dinet.orgDINET Dysautonomia Information Network
dinet.org Profile
dinet.org
Sub Domains:forums.dinet.org
Title:DINET Dysautonomia Information Network
Description:Jump to content DINET Site About Us About Us Advisors DINET Disclaimer Privacy & Security Information Resources Dysautonomia disorders, diagnostics & Info POTS Video: Living with POTS Informat
Discover dinet.org website stats, rating, details and status online.Use our online tools to find owner and admin contact info. Find out where is server located.Read and write reviews or vote to improve it ranking. Check alliedvsaxis duplicates with related css, domain relations, most used words, social networks references. Go to regular site
dinet.org Information
Website / Domain: |
dinet.org |
HomePage size: | 107.741 KB |
Page Load Time: | 0.234438 Seconds |
Website IP Address: |
13.35.125.106 |
Isp Server: |
Xerox Corporation |
dinet.org Ip Information
Ip Country: |
United States |
City Name: |
Norwalk |
Latitude: |
41.125736236572 |
Longitude: |
-73.44017791748 |
dinet.org Keywords accounting
dinet.org Httpheader
Content-Type: text/html;charset=UTF-8 |
Content-Length: 20975 |
Connection: keep-alive |
Date: Tue, 21 Apr 2020 14:06:13 GMT |
Server: Apache/2.4.41 (Amazon) OpenSSL/1.0.2k-fips PHP/7.1.33 |
X-Powered-By: PHP/7.1.33 |
Expires: Tue, 21 Apr 2020 14:21:13 GMT |
Cache-Control: max-age=900, public |
Pragma: public |
X-IPS-LoggedIn: 0 |
Content-Encoding: gzip |
X-XSS-Protection: 0 |
X-Frame-Options: sameorigin |
X-IPS-Cached-Response: Tue, 21 Apr 2020 14:04:53 GMT |
Last-Modified: Tue, 21 Apr 2020 14:04:53 GMT |
Vary: cookie,Accept-Encoding |
X-Cache: Miss from cloudfront |
Via: 1.1 36cc13280ef76bb2fee6ae5eed6fec2e.cloudfront.net (CloudFront) |
X-Amz-Cf-Pop: SFO20-C1 |
X-Amz-Cf-Id: 9ac7gHN6H5ZSmrFHknrA3n2jEQpyTeZAVqbNBR2SVagcjWf8Trwdwg== |
dinet.org Meta Info
charset="utf-8"/ |
content="width=device-width, initial-scale=1" name="viewport"/ |
content="summary" name="twitter:card" |
content="Dysautonomia Information Network (DINET)" property="og:site_name"/ |
content="en_US" property="og:locale"/ |
content='<meta name="google-site-verification" content="6OL8OkUId4hlzr-3oDe1GOs13zuImEEH6Zk29PIVYT4" />' name='<meta name="google-site-verification" content="6OL8OkUId4hlzr-3oDe1GOs13zuImEEH6Zk29PIVYT4" />'/ |
content="" name="keywords"/ |
content="https://www.dinet.org/browserconfig.xml/" name="msapplication-config"/ |
content="/" name="msapplication-starturl"/ |
content="Dysautonomia Information Network (DINET)" name="application-name"/ |
content="Dysautonomia Information Network (DINET)" name="apple-mobile-web-app-title"/ |
content="#3d6594" name="theme-color"/ |
13.35.125.106 Domains
dinet.org Similar Website
Domain |
WebSite Title |
dinet.org | DINET Dysautonomia Information Network |
forums.dinet.org | DINET Dysautonomia Information Network |
lin.canhr.org | Legal Information Network - CANHRs Legal Information Network |
nic.com | NICCOM Network Info Center - - Network Information Center |
ink.kansas.gov | Information Network of Kansas | Kansas INK Board Information |
njgin.state.nj.us | NJ Geographic Information Network |
admin.globalinformationnetwork.com | Global Information Network |
globalinformationnetwork.com | Global Information Network |
webmail.castles.com | Castles Information Network |
njgin.nj.gov | NJ Geographic Information Network |
informe.org | InforME: Information Resource Network |
ein.az.gov | Arizona Emergency Information Network | Arizona Emergency information Network |
castles.com | Home | Castles Information Network |
bellezaseslavas.informe.com | InforME Information Resource Network |
beta.vin.com | Veterinary Information Network®, Inc. - VIN |
dinet.org Traffic Sources Chart
dinet.org Alexa Rank History Chart
dinet.org Html To Plain Text
Jump to content DINET Site About Us About Us Advisors DINET Disclaimer Privacy & Security Information Resources Dysautonomia disorders, diagnostics & Info POTS Video: Living with POTS Information guides for family and friends NCS PAF MSA EDS Find a physician Newsletter - Dysautonomia News Link Directory Studies - Open Recruitment Research & News All of Us Research Program - NIH Physicians Find A Physician Advisors Physician Brochures For the Medical Community Get Involved Join DINET Volunteer Physician Brochures How can I help? Donate Dysautonomia Awareness Month Shop DINET Forum & Community Forums Become a forum member Guidelines Assistance Member Stories Information for Caregivers Activity All Activity Search Online Users Calendar Shop DINET Leaderboard More More -- Existing user? Sign In Sign In Remember me Not recommended on shared computers Sign in anonymously Sign In Forgot your password? Sign Up Search In Everywhere Pages More options... Find results that contain... Any of my search term words All of my search term words Find results in... Content titles and body Content titles only All Activity Home COVID-19 Information and Resources Statement from Dr. Peter Rowe, Director of Children's Center CFS Clinic, John Hopkins Univ. School of Medicine on COVID-19 and CFS and OI COVID-19 Resources from the Rare Disease Network and Global Genes Dysautonomia and Coronavirus - an article by Dr. Blitshteyn, one of DINET's medical advisers. COVID-19 Part 2 - Article by Dr. Blitshteyn, Director and Founder of the Dysautonomia Clinic. This article tells you what to do now. From DINET: We live with chronic illness - tips for COVID-19 isolation then join the forum to weigh in with your tips - POTS is like cabin fever Important information you need to know about face masks Dysautonomia is a term used to describe abnormal functioning of the autonomic nervous system Dysautonomia means dysregulation of the autonomic nervous system. Dysregulation of the autonomic nervous system can produce the apparent malfunction of the organs it regulates. For this reason, dysautonomia patients often present with numerous, seemingly unrelated maladies. Symptoms are wide ranging and can include problems with the regulation of heart rate, blood pressure, body temperature and perspiration. Other symptoms include fatigue, lightheadedness, feeling faint or passing out (syncope), weakness and cognitive impairment. Autonomic dysfunction can occur as a secondary condition of another disease process, like diabetes, or as a primary disorder where the autonomic nervous system is the only system impacted. These conditions are often misdiagnosed. Over one million Americans are impacted with a primary autonomic system disorder. The more common forms of these conditions include Postural Orthostatic Tachycardia Syndrome (POTS)/Orthostatic Intolerance (OI), Neurocardiogenic Syncope (NCS), Pure Autonomic Failure (PAF) and Multiple Systems Atrophy (MSA). DINET provides information and personal stories on several types of dysautonomia. You may download our informational brochure here. Dysautonomia Information Network Do you have a question for our Medical Expert's? DINET's Medical Advisors are physicians who specialize in different aspects of dysautonomia treatment and research. We are honored that these dedicated professionals share their time and knowledge with us and you! If you have a question that you would like answered by our advisory team, please send it to webmaster@dinet.org Questions are posted in our quarterly newsletter. Discussion Forum: Trending Topics 14 Does coffee actually help anyone here? By Nin Started March 20 1 Anyone here ever seen Dr Gupta in the UK? By Nin Started 14 hours ago 48 Coronavirus By Scout Started January 29 5 Catecholamines, vagus-nerve issues, hypersensitivity By judyinthesky Started Sunday at 06:20 PM 24 Haircut... It's One Of My Triggers I Guess By Alaska Started March 26, 2012 Ongoing Studies NEW RECRUITING: John Hopkins University is conducting a study to develop a test for screening for positive diagnosis in patients with dyautonomia-related dysmotility who are being considered for Celiac Ganglion Resection surgery. The study's objective is to develop a test that will determine if a patient will be helped by the surgery before it is done. To read more about this study, please visit our recruitment study page RECRUITING: Clarkson University is conducting a study to learn about what factors affect the function and quality of life for people living various chronic illnesses. The study should take approximately 45 minutes to complete and asks similar questions to those asked by healthcare providers. Questions will include quality of sleep, fatigue, pain, etc. All answers will be anonymous. Participants must be 18 years or older. Each person participating is requested to ask one healthy person to also participate but this is not required. To learn more about this study or to begin the questionnaire, visit https://www.surveymonkey.com/r/V3P7S9J This is an IRB approved study. RECRUITING: New study examining the impact on parents raising a child between the ages of 8 - 17 who have been diagnosed with POTS. To read more about this study, including contact information, visit https://www.dinet.org/info/studies/studies-dysautonomia-related-chronic-illness-r107/ RECRUITING: Vanderbilt University is conducting a study entitled "Pathophysiology and therapy of Orthostatic Intolerance." Studies to identify the role of the brain, the autonomic nervous system and the vasculature in Orthostatic Intolerance. Read more about this study. OPEN - Recruiting: The Mayo Clinic, is conducting a study to better understand the causes of autonomic disorders and to collect and store DNA for future studies of dysautonomia. Read more about this study Recruiting: The University of CA is currently recruiting POTS patients for a clinical study examining the effect of Ivabradine on heart rate fluctuations - specifically tachycardia. Ivabradine is a drug currently used to treat heart failure but is not currently used for the treatment of POTS. Read more about this study Recruiting: What is it like living with POTS during emerging adulthood? Virginia Tech is recruiting 18 - 29 year olds diagnosed with POTS for a family science study on POTS. This is a parent-child study so both must be willing to participate. Read more about the study or email Virginia Tech Department of Human Development. RECRUITING: Clinical Trial: University of Oklahoma and Vanderbilt University are recruiting POTS patients for the Autoimmune Basis for Postural Tachycardia Syndrome study. They are looking at the levels of immune proteins (autoantibodies) in POTS patients and their relation to symptoms over time. Read more about the trial RECRUITING: Clinical Trial : Dr. Satish Raj and the University of Calgary is recruiting POTS patients for a study of the effects of compression on the symptoms of POTS. Read more about the trial RECRUITING: Clinical Trial: Studying Vitamin D deficiency in children ages 10 to 18. A diagnostic workup for chronic nausea unexplained by conventional diagnostic tests has unexpectedly revealed underlying cardiovascular instability manifesting as orthostatic intolerance, primarily defined as POTS (88%). Read more about the trial. Still RECRUITING: ME/CFS: Activity Patterns and Autonomic Dysfunction this 4-year study is looking at the relationship between illness, non-improvement, patient activity, and autonomic function. The long-range goal is to look at the activities that trigger a relapse or non-improvement vs the activities that bring better symptom management. The study will continue until December of 2019. Visit the study page for information NEW: RECRUITING: The NIH All of Us Research Program is now open to people with or without illness. This project's goal is to amass data from 1 million plus people in the U.S. to provide physicians and researchers the ability to use Precisio...
dinet.org Whois
"domain_name": "DINET.ORG",
"registrar": "GoDaddy.com, LLC",
"whois_server": "whois.godaddy.com",
"referral_url": null,
"updated_date": [
"2017-07-22 09:26:23",
"2013-12-23 17:14:45"
],
"creation_date": "2002-06-06 18:02:18",
"expiration_date": "2021-06-06 18:02:18",
"name_servers": [
"NS1.INVISIONCIC.COM",
"NS2.INVISIONCIC.COM",
"NS3.INVISIONCIC.COM",
"NS4.INVISIONCIC.COM"
],
"status": [
"clientDeleteProhibited https://icann.org/epp#clientDeleteProhibited",
"clientRenewProhibited https://icann.org/epp#clientRenewProhibited",
"clientTransferProhibited https://icann.org/epp#clientTransferProhibited",
"clientUpdateProhibited https://icann.org/epp#clientUpdateProhibited",
"clientTransferProhibited http://www.icann.org/epp#clientTransferProhibited",
"clientUpdateProhibited http://www.icann.org/epp#clientUpdateProhibited",
"clientRenewProhibited http://www.icann.org/epp#clientRenewProhibited",
"clientDeleteProhibited http://www.icann.org/epp#clientDeleteProhibited"
],
"emails": "abuse@godaddy.com",
"dnssec": "unsigned",
"name": null,
"org": "Dysautonomia Information Network",
"address": null,
"city": null,
"state": "New Hampshire",
"zipcode": null,
"country": "US"